Tag: Emanuel Syndrome

Raising the Goddess of Spring – Book Review

Raising the Goddess of Spring – Book Review

I can’t even begin to tell you how many times I’ve wish I had a “manual” 😆. Well, it finally arrived 🥳. “Raising the Goddess of Spring: A Guide for Raising Children with Rare Chromosome Disorders” by Stephanie Rese is full of knowledge and helpful information. Stephanie 

StoryCorps & The Meridian Library

StoryCorps & The Meridian Library

As 2019 comes to an end I’m excited to share this amazing opportunity I (Joaquin’s mom) had this year, it’s something I’m most proud of and was completely unexpected! Growing up I loved books and when I found out I was pregnant with Joaquin I 

Game Changers Idaho

Game Changers Idaho

Joaquin did his first sports clinic today with Game Changers Idaho 🙌🏼🙌🏼🙌🏼 This mama was so nervous but as soon as I saw that Rachel from @The Sensory Project 208 was Joaquin’s 1 on 1 volunteer I felt so much better 💛 Rachel did such an amazing 

Genetics Testing Results – Emanuel Syndrome

Genetics Testing Results – Emanuel Syndrome

Genetics results are in and just like everyone suspected, Joaquin is a very unique guy!! Joaquin has a rare genetics condition called Emanuel Syndrome. If you haven’t heard of it, you are not alone! The numbers are hard to find but from what our research