Emanuel Syndrome Warrior
I canโt even begin to tell you how many times Iโve wish I had a โmanualโ ๐. Well, it finally arrived ๐ฅณ. โRaising the Goddess of Spring: A Guide for Raising Children with Rare Chromosome Disordersโ by Stephanie Rese is full of knowledge and helpful information. Stephanie …
As 2019 comes to an end Iโm excited to share this amazing opportunity I (Joaquinโs mom) had this year, itโs something Iโm most proud of and was completely unexpected! Growing up I loved books and when I found out I was pregnant with Joaquin I …
Joaquin did his first sports clinic today with Game Changers Idaho ๐๐ผ๐๐ผ๐๐ผ This mama was so nervous but as soon as I saw that Rachel from @The Sensory Project 208 was Joaquinโs 1 on 1 volunteer I felt so much better ๐ Rachel did such an amazing …
Genetics results are in and just like everyone suspected, Joaquin is a very unique guy!! Joaquin has a rare genetics condition called Emanuel Syndrome. If you havenโt heard of it, you are not alone! The numbers are hard to find but from what our research …