Tag: Emanuel syndrome warrior

Raising the Goddess of Spring – Book Review

Raising the Goddess of Spring – Book Review

I can’t even begin to tell you how many times I’ve wish I had a “manual” 😆. Well, it finally arrived 🥳. “Raising the Goddess of Spring: A Guide for Raising Children with Rare Chromosome Disorders” by Stephanie Rese is full of knowledge and helpful information. Stephanie 

Game Changers Idaho

Game Changers Idaho

Joaquin did his first sports clinic today with Game Changers Idaho 🙌🏼🙌🏼🙌🏼 This mama was so nervous but as soon as I saw that Rachel from @The Sensory Project 208 was Joaquin’s 1 on 1 volunteer I felt so much better 💛 Rachel did such an amazing 

Genetics Testing Results – Emanuel Syndrome

Genetics Testing Results – Emanuel Syndrome

Genetics results are in and just like everyone suspected, Joaquin is a very unique guy!! Joaquin has a rare genetics condition called Emanuel Syndrome. If you haven’t heard of it, you are not alone! The numbers are hard to find but from what our research