Author: joaquinslife

Raising the Goddess of Spring – Book Review

Raising the Goddess of Spring – Book Review

I can’t even begin to tell you how many times I’ve wish I had a “manual” 😆. Well, it finally arrived 🥳. “Raising the Goddess of Spring: A Guide for Raising Children with Rare Chromosome Disorders” by Stephanie Rese is full of knowledge and helpful information. Stephanie 

StoryCorps & The Meridian Library

StoryCorps & The Meridian Library

As 2019 comes to an end I’m excited to share this amazing opportunity I (Joaquin’s mom) had this year, it’s something I’m most proud of and was completely unexpected! Growing up I loved books and when I found out I was pregnant with Joaquin I 

Game Changers Idaho

Game Changers Idaho

Joaquin did his first sports clinic today with Game Changers Idaho 🙌🏼🙌🏼🙌🏼 This mama was so nervous but as soon as I saw that Rachel from @The Sensory Project 208 was Joaquin’s 1 on 1 volunteer I felt so much better 💛 Rachel did such an amazing 

Genetics Testing Results – Emanuel Syndrome

Genetics Testing Results – Emanuel Syndrome

Genetics results are in and just like everyone suspected, Joaquin is a very unique guy!! Joaquin has a rare genetics condition called Emanuel Syndrome. If you haven’t heard of it, you are not alone! The numbers are hard to find but from what our research 

Sensory Project Brand Rep

Sensory Project Brand Rep

But First….Heavy Work 🙌🏼😎 Introducing the new brand rep for The Sensory Project! Heavy Work was not something I had heard of before Joaquin…so many things we’ve learned on this journey! Now #HeavyWork is everyday life 💪🏼 That’s why we’re so excited to announce that Joaquin is 

Working with an AAC Specialist

Working with an AAC Specialist

Today we had our very first appointment with an AAC Specilist, which is speech therapist that specializes in AAC (augmentative and alternative communication) 👏🏼🙌🏼👏🏼🙌🏼 We are SO excited to have moved off of the waiting list so quickly (thank you to the person that had 

Helping Joaquin with Anxiety

Helping Joaquin with Anxiety

Anxiety is the worst! I have my own experience with anxiety and although mine is pretty mild (except during pregnancy) it’s still horrible to deal with. Watching Joaquin deal with anxiety is heartbreaking. Joaquin is usually cool as a cucumber, it’s hard to phase him, 

Happy Halloween!

Happy Halloween!

🚨 SWAT is in the building 🚓!!! Halloween hasn’t really been a big thing for us in the past. Joaquin’s first Halloween he was only 6 months old so it was more about dressing him up to look cute. Second Halloween was still pretty cute 

Our Trip to the Pumpkin Patch

Our Trip to the Pumpkin Patch

Joaquin did FANTASTIC at the pumpkin patch!! Honestly, we weren’t sure what to expect, would it be sensory overload, would it give him anxiety, would he be able to use his walker, would he like it?!   Surprise surprise he did wonderfully!! The patch was, 

Parent Teacher Conference Time

Parent Teacher Conference Time

We had Joaquin’s first parent teacher conference this week and learned some great things about what Joaquin’s been up to at school! 🔹He’s seeking out help! He’ll grab a teacher’s hand and put it on a toy, book, tablet…something he wants to continue playing with