Raising the Goddess of Spring – Book Review

Raising the Goddess of Spring – Book Review

I canโ€™t even begin to tell you how many times Iโ€™ve wish I had a โ€œmanualโ€ ๐Ÿ˜†. Well, it finally arrived ๐Ÿฅณ. โ€œRaising the Goddess of Spring: A Guide for Raising Children with Rare Chromosome Disordersโ€ by Stephanie Rese is full of knowledge and helpful information. Stephanie is the founder of Chromsome 22 Central – a nonprofit run by parents that represents and supports rare chromosome 22 disorders. Her daugher Maia is almost 26 and she has the same rare chromsome disorder as Joaquin, Emanuel Syndrome.

In my opinion, Stephanie is the definition of #AdvocateLikeAMother ๐Ÿ‘๐Ÿผ 

Raising the Goddess of Spring - Joaquinโ€™s Life Book Review
Raising the Goddess of Spring – a Guide for Parents Raising Children with Rare Chromsome Disorders

What Youโ€™ll Find

This book covers everything from pregnancy to facing the unthinkable (yup, she goes there). It has chapters on understanding chromosomes by Dr. Melissa Carter. Sections on education planning by Murney Rinholm – teacher and mother to a (now adult) child with a rare chromosome disorder. Youโ€™ll also find chapters on advocacy, dealing with trauma, self care, and friendships. I will say one of my favorite things I found in this book were the parent perspectives and words shared by siblings. 

Reading this book I not only gained knowledge but I cried, I smiled, I felt seen, and I felt validated in my struggles and feelings. I also felt empowered and letโ€™s face it, some days thatโ€™s really difficult when youโ€™re facing such an uphill battle.

Raising the Goddess of Spring is so all encompassing that I skipped over some chapters (uhm, no thank you โ€œReproductive Considerationsโ€ we are all done with that ๐Ÿ˜‚). There are also some chapters Iโ€™m not quite ready for. I see you – โ€œLooking to the Futureโ€ & โ€œFacing the Unthinkableโ€. I know theyโ€™re there and I know that when Iโ€™m ready Iโ€™ll read them…just not right now. 

Conclusion

If you are a parent, caregiver, or adult sibling of an individual with a rare chromosome disorder this a must read – find it on Amazon (affiliate link).

All proceeds made by the sale of Raising the Goddess of Spring: A Guide for Parents Raising Children with Rare Chromosome Disorders go to the parent run non-profit Chromome 22 Central that supports and represents rare chromosome 22 disorders.

Raising the Goddess of Spring


Leave a Reply

Your email address will not be published. Required fields are marked *